Preservation
of the confidentiality of patients, doctors and hospitals has the highest
priority for the Registry. It is essential to collect the names and
addresses of patients for the following reasons:
 to
prevent multiple registrations of the same patient.
to help identify patients for follow-up purposes and survival.
The Registry
is independent of all other agencies and will not share confidential information
except for ethically approved research, or to assist doctors in reviewing
their own workload. The standard provisions for medical confidentiality
apply to the Registry. It is also registered with the Data Protection
Act. All confidential information within the Registry is encoded,
protected by security systems and destroyed when no longer needed. A document
detailing confidentiality and rules for the issue of data is available
from the Registry. |